Greater Southern Illinois Administration Office
140 Iowa Avenue, Suite A
Belleville, Illinois 62220
Phone: (618) 236-2181
Toll Free: (866) 848-0472
Fax: (618) 236-3654
e-mail: ellenepilepsy@sbcglobal.net
Southern Illinois Branch Office
1100 South 42nd Street, Suite D
Mt. Vernon, Illinois 62864
Phone: (618) 244-6680
Fax: (618) 244-6686
e-mail: efsi@mvn.net
| Sharon's Ride. Run. Walk for Epilepsy 2010
Date: Sunday, September 19, 2010 (rain or shine)
Place: Southern Illinois University Edwardsville (SIUE) Starting at Parking Lot A, Vadalbene Center
Registration: Beginning at 9:00 a.m.
For more information click here.
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The EFGSI Summer 2010 Newsletter is now online!
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EFGSI Summer 2010 Newsletter |
Adolescent & Young Adult Health in the Post Reform Era Webinar
On Tuesday, August 17th, the National Institute for Management (NIHCM) Foundation will host a free webinar featuring adolescent health experts from the Georgetown University Center for Children & Families, the National Adolescent Health Information and Innovation Center at the University of California, San Francisco, the Guttmacher Institute, WellPoint Inc., and RAND.
As you know, adolescents and young adults are more likely to be uninsured than any other age group. Implementation of health reform and the reauthorization of the Children's Health Insurance Program (CHIPRA) are expected to change this reality by improving affordability and expanding both public and private coverage options.
As more young adults are able to stay on their parent's health insurance plans, ensuring access to confidential services will become even more important. This webinar will bring together health plans and leaders in the adolescent health community to discuss the impact of health reform and CHIPRA on access to high-quality, confidential health care services for adolescents and young adults.
DETAILS: Tuesday, August 17th, 12:00 PM (Central Daylight Time). To register electronically for this free webinar, visit http://nihcm.org/conference_registration. Participants must register no later than 11 AM (Central Daylight Time) on August 16th, 2010.
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RESOURCES
- Seizure Tracking online form
- Discovery Education & Epilepsy
- Epilepsy Foundation National Youth Council website
- Safety & Seizures
- Patient Medication Assistance Programs
- Epilepsy Classroom
- What Health Care Reform Means to You: Medicare Part D
Go to the Resource page for more information about these resources.
RESEARCH
Emory University School of Public Health is developing and testing a program called WebEase. The Webease program is an internet program that supports the self-management of epilepsy by people with epilepsy. It offers information on three major topics as they relate to epilepsy: medication management, stress management, and sleep management. How to participate? Please click here.
| EPILEPSY AND MY CHILD NEWSLETTER
The National Center for Project Access is proud to release its first issue of the "Epilepsy and My Child" Parent Newsletter. The newsletter contains important news and information for parents, teens, and kids. For the newsletter, click here.
2010 THROUGH THE LOOKING GLASS SCHOLARSHIP
Through the Looking Glass and its National Center for Parents with Disabilities and their Families are pleased to announce new scholarships specifically for high school seniors and college students who have parents with disabilities. A total of ten $1000 scholarships will be given out Fall 2010. For more information, go to www.lookingglass.org.
ILLINOIS DEPARTMENT OF INSURANCE LAUNCHES WEBSITE FOR THE ILLINOIS PRE-EXISTING CONDITION INSURANCE PLAN (IPXP)
The Illinois Department of Insurance announced a website for consumers to learn more about the Illinois Pre-Existing Condition Insurance Plan (IPXP). The website, http://insurance.illinois.gov/IPXP, is an on-line forum for information about the federally-funded IPXP and includes frequently asked questions covering issues such as program eligibility, enrollment, funding, and premiums. Applications for the IPXP will be made available on the IPXP website once enrollment begins, which is expected in August, and estimated premiums for IPXP enrollees will be posted in July.
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| We thank Dr. Oz for doing an excellent piece on seizure first aid during his program on February 12th. This kind of education is so important for everyone to know. Please view the video and share with friends. View Video
| VIDEO ON MEDICATION SWITCHING BILL
The Illinois General Assembly is considering Senator Kotowski's anti-switching bill, Senate Bill 2060. To view the video, please click here.
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MEDICARE NEWS
WHAT HEALTH CARE REFORM MEANS TO YOU: MEDICARE PART D
The Patient Protection and Affordable Care Act is a historic health care reform bill that will transform access to health insurance for people with epilepsy. For more information about Medicare Prescription Drug Coverage & Health Care Reform, click here.
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EPGP: EPILEPSY PHENOME/GENOME PROJECT
The Epilepsy Phenome Genome Project (www.epgp.org) is the largest research study ever created to identify genes that influence epilepsy and genes that affect an individual's response to seizure medications. The National Institutes of Health is partnering with major epilepsy centers around the country to collect detailed information on 5,250 individuals over five years. The goal is to understand what causes epilepsy, which treatment will be effective, and why some families have multiple relatives with seizures.
If you would like more information about the project please contact:
Website: www.epgp.org
E-mail: info@epgp.org
Toll-free Phone: 1-888-279-3747
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For more information about Medication Switching, click on the picture above.
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Newsletter
Our newsletter can now be received by e-mail. If you would like to receive our newsletter by e-mail, please sign up here at Newsletter Sign Up.
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For information in Spanish, please click on the picture above to visit the new Epilepsy Spanish-language website:
www.fundacionparalaepilepsia.org
Toll Free phone numbers for Spanish-speaking callers are:
1-866-748-8008 (National Office - bilingual specialist will answer in Spanish)
1-800-377-9958 (National Center for Farmworker Health)
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The Epilepsy Foundation of Greater Southern Illinois will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through services, education, advocacy and research.
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