The Research Ambassador Program builds stronger connections between the epilepsy community and research, empowers those impacted by epilepsy to actively participate in treatment development and clinical research, addresses disparities in clinical trial representation, and ensures that research programs align with the needs of patients and caregivers.
The program kicks off with a two full-day, immersive, and interactive in-person ambassador bootcamp on February 20-21, 2027 in San Diego, California.
Participants can expect to engage in meaningful discussions and activities surrounding:
- Understanding the process of clinical research, and how new therapies are evaluated by the FDA before they reach the clinic
- Ensuring that outcome measures in trials represent true benefits for people with epilepsy
- Identifying and leveraging participants' individual strengths and interests to support research advocacy
- Learning how to work alongside researchers to improve clinical trial enrollment
- Building a deeper understanding of how data is used in clinical research and therapy development
- Engaging in dialogue on the importance of diversity and how we can build trust in clinical research
Applying to become a Research Ambassador is a three-part process. People living with epilepsy, their caregivers, and anyone who has a unique position to support our community can apply.
- Application: You must submit an application to the program. Application is available at epilepsy.com/ResearchAmbassador
- Nomination: You must have a sponsor from an epilepsy-focused organization, a previous Research Ambassador, or a physician nominate you for consideration by writing a letter of recommendation.
- Video: Upload a short video (less than 2 mins) telling us why you want to become a Research Ambassador.
IMPORTANT DATES
- October 30, 2026 - Applications Due
- November-December, 2026 - Applications in Review
- December, 2026 - Accepted Applicants Notified
- Februrary 20-21, 2027 - Ambassador Bootcamp
- Ongoing 2027 - Participate in future advocacy efforts
Questions: researchambassadors@efa.org
Information provided by the Epilepsy Foundation of America