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OUR MISSION

"The Epilepsy Foundation of Greater Southern Illinois (EFGSI) is committed to improving quality of life for persons with seizure disorders and/or other disabilities through service, education, and advocacy."

National Epilepsy Awareness Month

Understanding National Epilepsy Awareness Month

Every November, communities around the world turn purple for National Epilepsy Awareness Month (NEAM). This dedicated time brings vital attention to a complex neurological condition that affects millions of individuals and families globally.

Despite being one of the most common neurological conditions, epilepsy remains widely misunderstood, surrounded by myths and social stigma. NEAM serves as a powerful reminder of the power of education, empathy, and collective support in driving meaningful change.

To advocate effectively, it is essential to look at the numbers and understand how widespread seizure disorders truly are:

Metric Statistic What It Means
Lifetime Prevalence 1 in 26 people The odds of developing epilepsy at some point during a lifetime.
Seizure Probability 1 in 10 people The number of people who will experience at least one seizure in their lives.
U.S. Impact 3.4 Million Americans currently living with active epilepsy, including over 470,000 children.
Global Reach 65 Million people The worldwide population affected by seizure disorders.
Unknown Causes ~70% of cases The proportion of diagnoses where no clear underlying cause can be identified.

Dispelling Common Myths: What Are Seizures?

Epilepsy is defined by a tendency to experience recurrent, unprovoked seizures, which are sudden bursts of abnormal electrical activity in the brain. A common misconception is that all seizures involve dramatic shaking or convulsions. In reality, seizures present in many ways:

  • Focal (Partial) Seizures: Originating in a specific region of the brain, these may cause muscle twitches, sensory shifts, or brief confusion while the person remains conscious or partially aware.
  • Absence Seizures: Frequently seen in children, these short episodes often look like staring blankly into space for 10–15 seconds before normal activity resumes.
  • Tonic-Clonic Seizures: The classic form involving sudden loss of consciousness, body stiffness (tonic phase), and rhythmic jerking of limbs (clonic phase).

How You Can Get Involved This November

Everyone can contribute to building a safer, more inclusive world for people with epilepsy. Here are key ways to make an impact:

  1. Wear Purple: Purple is the official color for epilepsy awareness. Wearing purple apparel, ribbons, or accessories helps initiate conversations and shows solidarity.
  2. Get Seizure First Aid Certified: Take a free 90 minute course through the Epilepsy Foundation of Greater Southern Illinois to learn certified response protocols. Please call (618) 236-2181 to schedule your free Seizure First Aid training.
  3. Amplify Voices: Share educational facts, personal stories, and support resources on social media using official campaign hashtags like #NEAM and #SeizureSmart.

Final Reflection

Awareness creates understanding, and understanding fosters compassion. By learning the facts about epilepsy and sharing seizure first aid, we can eliminate stigma and build communities where everyone feels supported, safe, and valued.

Upcoming Informational Tables

Date Library Time
November 5th Wood River Library 9:00 am - 12:00 pm
November 9th Nashville Library 11:00 am - 3:00 pm
November 13th Cairo Public Library 11:00 am - 2:30 pm
November 17th Brookport Public Library 12:00 pm - 3:00 pm
November 20th Collinsville Library 9:00 am - 12:00 pm
November 20th Metropolis Public Library 10:30 am - 2:30 pm
November 24th Harrisburg Public Library 10:00 am - 2:00 pm

Text generated by Gemini AI, October 30, 2026, https://gemini.google.com/app.