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OUR MISSION

"The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives."

 

NEW UPDATE ON NAYZILAM AVAILABILITY

Drug Update

NAYZILAM® (midazolam) nasal spray is now available again in pharmacies across the country.

What does this mean for families?

  • They may contact their preferred pharmacy to fill a new or existing prescription.
  • A pharmacy typically orders NAYZILAM and receives it within 24-48 hours.
  • If patients need assistance in accessing NAYZILAM at their preferred pharmacy, they are encouraged to call ucbCARES® at 1-844-599-2273 or email ucbCARES@ucb.com.

Previous Report on Shortage

We have been made aware that there is a temporary shortage of NAYZILAM® (midazolam) nasal spray, which is a newly approved rescue medication for break-through seizures. This shortage is due to an unforeseen manufacturing delay that is not COVID-related. The delay is not a result of a safety or medical issue.

In early October, supply in the local pharmacies will be limited, but the expectation is that Nayzliam will be available again in late October.

The company manufacturing Nayzilam has set up an information and assistance phone number and email for individuals who may be affected by this shortage.

There are medications other than Nayzilam which can be used as Rescue Therapy. Please talk to your health care provider for alternative rescue options if you are affected by this shortage.

Authored by: Elaine Wirrell MD on 10/2020