CAREGIVERS, THE ULTIMATE CHAMPIONS

Caregivers are the unsung heroes in the daily battle against seizures. From helping with daily tasks to ensuring the safety of a loved one, caregivers are critical to the well-being of a friend or family member with epilepsy.

It's no easy job, and luckily, there are resources to support you along the way.

How Can You Help

The responsibilities of a caregiver vary depending upon the needs of the person with epilepsy. It's important to have an open and honest conversation with your loved one to determine how you can help.

• Keeping them safe during a seizure
• In rare cases, calling for medical help when a partial-onset seizure continues for a prolonged period of time.
• Staying with them or seeing them home safely after a seizure
• Noting any pattern or trigger to their seizures, which may help if they don't recall their seizures
• Reminding and helping with taking epilepsy medicine.
• Going with them to appointments, helping to take notes, or providing descriptions of seizures (recording what happens before, during, and after a seizure) to the person with epilepsy and/or their healthcare provider.
• Acting as a representative or advocate for the person, with their healthcare provider or others involved in their care.
• Joining them in activities that might pose a safety risk if they were to have a seizure.
• Providing transporation, if necessary
• Helping to create a safe environment

Remember to always talk with your loved one's healthcare provider about any questions you may have.

Article from the XCOPRI website